(DDM) – Nigeria continues to struggle with one of the world’s highest burdens of sickle cell disorder.
DDM gathered that the Sickle Cell Awareness Initiative Ireland–Nigeria (SCAIIN) has called for urgent policy action.
The NGO advocates nationwide newborn screening to prevent deaths and reduce lifelong complications from the disease.
The call was made during a sickle cell health promotion programme at Rivers State University Teaching Hospital, Port Harcourt.
SCAIIN launched a targeted awareness campaign to address stigma, misinformation, and late diagnosis, all factors worsening outcomes.
Founder Mrs Esther Pepple Onolememen stressed that Nigeria must move beyond awareness to structured early detection and care.
She said social discrimination and ignorance continue to isolate families affected by sickle cell disorder.
Onolememen noted that newborn screening allows early planning, prompt intervention, and better quality of life for children.
She added, “Newborn screening is the foundation of effective sickle cell care. Without it, we are reacting too late.”
She emphasized that early detection can prevent complications and save lives.
Onolememen commended the Niger Delta Development Commission (NDDC) for supporting the initiative.
She said sickle cell disease is both a health and development issue affecting productivity, family stability, and social outcomes.
NDDC Managing Director Dr Samuel Ogbuku described sickle cell disorder as a major public health challenge in the Niger Delta.
Access to early diagnosis and specialised care remains limited in the region, he added.
Represented by Dr Patience Ezugu, Director of Education, Health and Social Services, Ogbuku said preventive healthcare drives the Commission’s involvement.
He highlighted the importance of knowing one’s genotype early, especially for young people.
Ogbuku said patients deserve improved access to care and ongoing support.
He reaffirmed NDDC’s commitment to partner with stakeholders for early diagnosis, community education, and research-driven interventions.
The human cost of delayed diagnosis was highlighted by Mr Derefaka Yemiesibo, a parent of a child living with sickle cell disorder.
He expressed gratitude to NDDC and SCAIIN for sustained advocacy that gives families hope and visibility.
The programme featured health education, counselling, and distribution of medical support kits to patients.
It reinforced calls for a shift from crisis response to prevention-led sickle cell management in Nigeria.
Advocates stressed that early intervention, education, and community support are crucial to reducing mortality.
The event emphasized collaboration between government agencies, NGOs, and families in addressing the disorder.
Experts say that structured newborn screening could transform sickle cell outcomes nationwide.
The programme also aimed to reduce stigma and encourage regular monitoring for affected families.
Stakeholders called on policymakers to adopt legislation supporting routine screening and early intervention programmes.
DDM gathered that preventive healthcare remains central to reducing Nigeria’s long-term sickle cell burden.
The collaboration between SCAIIN and NDDC highlights a growing focus on sustainable health solutions in the Niger Delta.
Families and healthcare workers were urged to prioritise awareness, screening, and supportive care for newborns.
The initiative underscores that effective sickle cell management begins with early detection and community engagement.
